in july, my best friend's daughter was diagnosed with osteogenesis imperfecta type V! join us for a CHARITY CYCLEBAR RIDE on SATURDAY OCTOBER 7TH at NOON. PROCEEDS GO TOWARDS THE Osteogenesis Imperfecta Foundation.
REGISTER HERE TO DONATE + BOOK YOUR BIKE:
if you are unable to ride, no worries! Amanda has set-up a donation link:
dessert treats by our dear friend Just Bakecause to follow this ride ♥
What is OI: OI is caused by one of several genes that aren’t working properly.
Each of the genes that cause OI plays a role in how the body makes collagen. Collagen is a material in bones that helps make them strong. When these genes aren’t working properly, there isn’t enough collagen, or the collagen doesn’t work properly. This leads to weak bones that break easily.
Most children inherit the gene that doesn’t work properly from one parent. Some inherit it from both parents. In some cases, neither parent passes on this gene, Isla's case is a random genetic muation not inherited from Nick or myself. There are 8 types of OI, Isla has been diagnosed with Type V which one of the more rare forms.
Becuase there are fewer than 20,000 US cases per year this disease is considered very rare. Please Ride for Isla and your donations will go to further research for Osteogensis Imperfecta!